“When you have your health, you have everything. When you do not have your health, nothing else matters at all.” (Augusten Burroughs, writer)
I don’t believe this entirely (in particular, you have to wonder if the writer had children), but I certainly understand the sentiment. The first time I had cancer, there were so many things I was trying to organize before going to the hospital, things I assumed I was coming back to as soon as the surgery was over.
Once the diagnosis came back, and turned out to be bigger and scarier than expected, I remember being amazed at how quickly all those things felt completely unimportant. Faced with the proposition of losing your health, so many things that feel important fall away with an ease you could never have imagined. Getting a hard health diagnosis is like being confronted by a big guy with a knife. When he starts chasing you at high speed, and you start running, you aren’t thinking about some report you have to turn in at work the next day.
At the same time, living with a hard health diagnosis is like running from a guy with a knife who is moving in slow motion. You have time to eat something, take a shower, and even turn in a report or two — but you can’t really forget that the guy with the knife is coming for you, that at some point you’re going to need to dodge and weave, and keep moving. It’s a different existence from people who don’t have any slow motion knife guys in their lives.
All of this is just the way my mind tries to intellectualize and metaphorize my circumstances.
Like the fact that the doctor came in after my colonoscopy last week to say she’d found a polyp that she thought looked cancerous, and that, due to some scar tissue, she’d been unable to remove it. Her proposal, even in those first moments coming out from sedation, was daunting: Remove the rest of my colon. As in all of it.
It didn’t seem much less daunting a few days later, when we had a video consult. The polyp—the cancerous polyp— is very small, but because of my genetic mutation (Lynch Syndrome), the larger surgery is recommended —I guess it’s the doctors’ way of avoiding the knife-guy — or at least slowing him almost to a stop. But it would entail some big lifestyle changes that I’m not sure I’m ready to embrace. My instinct to opt for something a little less life-changing, even if that means I need to spend more time in the future looking around corners for the knife guy. Because my mutation affects multiple organs, I feel like, knife-guy’s never going to go away completely no matter what, so maybe concentrate on quality of life over quantity.
Working through all this — organizing more scans and conversations, and making some immediate changes to my diet and meditation — has quickly become a preoccupation. Maybe because it isn’t immediately dire (I’ve managed to push any surgery to late December or January), things in my life haven’t dropped completely off my radar in terms of importance in the way that I’ve had happen in the past, but certainly they’ve become smaller blips.
One blip that is still pretty large is this: Paul is having his gall-bladder removed today. It’s supposed to be an outpatient surgery. I’ll be taking him to the hospital in about an hour. In another timeline, where my results last week were clear, this would have been the big headline news, perhaps the only topic of this blog. Indeed, we both have lots of thoughts and feelings around it —what it means in terms of lifestyle, identity, overall health — but for the moment, we’d appreciate all good thoughts just to get through the procedure with no complications.